International Child Amputee Network

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Entry #: 77

Entry Date: 2010-08-10 12:25:36

Name: Kathy Link
Email: Protected
Site Rating: 10
Visitor Comments: I am the mother of a 13 y/o girl with Ollier/maffucci syndrome who has recently undergone amputations of both legs at the hip. I am happy to learn about this website and am looking for any suggestions to help with toileting or clothing or anything else that comes to mind.

Entry #: 76

Entry Date: 2010-04-23 19:55:32

Name: Cindy Elliott
Email: Protected
Site Rating: 10
Visitor Comments: I am nearing the end of my adoption home study, and my family and I have a special interest in a child with limb differences. Your site has been very informative and encouraging. Thank you!

Entry #: 75

Entry Date: 2009-03-26 11:07:47

Name: Sara Veldhuizen
Email: Protected
Site Rating: 10
Visitor Comments:

I'm pleased to find this site.  I work with families in the birth to three program in Illinois.  I have a client for which this information will be so helpful.


Thanks.


Entry #: 74

Entry Date: 2008-11-05 13:51:49

Name: Laura
Email: Protected
Site Rating: 10
Visitor Comments: I am a 14 year old amputee bk and I am recommending any kids ages 10-16 go to ACA youth camp its a camp for only amputees so you don't feel left out there and you also learn how to do things you never thought possible!

Entry #: 73

Entry Date: 2008-09-13 00:43:06

Name: Melissa Mennig
Email: Protected
Site Rating: 8
Visitor Comments: Hi all,

I thought this website was very cool. I never really knew anything like this existed! Although, I guess I've never looked :) I am 24 years old and I was born without the lower part of my right arm. It was really neat to read everyone's stories and see how different people do different things (it looks like we all developed ways that work for us!) Anyways, just wanted to share my thoughts.

Entry #: 72

Entry Date: 2008-08-03 22:22:46

Name: Bess Posada
Email: Protected
Site Rating: 10
Visitor Comments: I am 24 weeks along in my pregnancy with our second son, Oliver. We found out at a routine sonogram that Ollie will have an LBE limb difference. I have been comforted, encouraged, and excited countless times by this website! My husband and I had to deal with the initial shock of the news and this website has helped me in so many ways. We are so excited to meet our son in November and even more excited to see what God's mighty plan is for both of our sons :).

Thank you, thank you, thank you. Bess

Entry #: 71

Entry Date: 2008-07-26 23:15:25

Name: Adriane Grimaldi
Email: Protected
Web Site: Special Blessings
Site Rating: 10
Visitor Comments: Special Blessings is a helpful resource parents with children with a limb difference. Check out our website for info and resources. We offer monthly support meeting for parents and activities for the kids to get together in Arizona.
Thank you Joyce and all the others for all your work at the ICAN Conference in Phoenix - It was awesome! I can send you photos!!
Adriane Grimaldi, Arizona

Entry #: 70

Entry Date: 2008-07-23 16:06:43

Name: Jan Droegemeier
Email: Protected
Site Rating: 10
Visitor Comments:

Hello, sister (that would be Joyce Baughn in case someone else intercepts this!) I haven't been to your web site for some time--it looks great! Thought maybe there would be some snaps of your Phoenix meet!


Love you, Jan


Entry #: 69

Entry Date: 2008-06-08 20:08:25

Name: jm mccarthy
Email: Protected
Site Rating: 10
Visitor Comments: very useful & inspiring

Entry #: 68

Entry Date: 2008-03-19 20:17:51

Name: Marcia Meyer
Email: Protected
Site Rating: 10
Visitor Comments: I am interested in adopting a child.

Entry #: 67

Entry Date: 2008-03-13 19:52:08

Name: christy conner
Email: Protected
Site Rating: 10
Visitor Comments:

My daughter had amniotic band syndrome with her first child . As a result he had to have his leg amputated , just below the knee. I would like more information about this condition, if anyone has information or has been through this, please e-mail me.



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